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Health : Diseases, Disorders, and Disciplines

Charcot-Marie-Tooth Association

Seeking a cure for CMT while improving the quality of life for those affected by it

100.00

P.O. Box 105 Glenolden, PA 19036
tel: (800) 606-2682   Web Site
EIN: 22-2480896

Board Leadership
Gilles Bouchard
President

CEO
Amy Gray
CEO

 
 
  Score
(out of 100)
Rating
Overall Score & Rating 100.00
  Financial 100.00
  Accountability & Transparency 100.00
This rating was published 02/01/2022 and includes data from FY2020, the most recent 990 received at that time.

The Charcot-Marie-Tooth Association (CMTA) was founded in 1983 to generate the resources to find a cure for CMT, a genetic neurological disorder that affects some 2.8 million people of all races and ethnic groups worldwide. The disease kills the long nerves to the feet and hands. As the nerves to the extremities weaken and die, the muscles around them atrophy and patients lose normal use of their feet, legs, hands and arms. In fulfillment of its mission, the CMTA funds a multifaceted research program called the Strategy to Accelerate Research, which brings together the world's leading CMT researchers to collaborate with the National Institutes of Health, universities, and pharmaceutical, biotechnology, and research service companies in partnerships that are driving progress toward treatments and cures for CMT. While the CMTA searches for a cure, it also creates awareness about this orphan disease and works to improve the quality of life of all those affected by it.

The Charcot-Marie-Tooth Association (CMTA) was founded in 1983 to generate the resources to find a cure for CMT, a genetic neurological disorder that affects some 2.8 million people of all races and ethnic groups worldwide. The disease kills the long nerves to the feet and hands. As the nerves to the extremities weaken and die, the muscles around them atrophy and patients lose normal use of their feet, legs, hands and arms. In fulfillment of its mission, the CMTA funds a multifaceted research program called the Strategy to Accelerate Research, which brings together the world's leading CMT researchers to collaborate with the National Institutes of Health, universities, and pharmaceutical, biotechnology, and research service companies in partnerships that are driving progress toward treatments and cures for CMT. While the CMTA searches for a cure, it also creates awareness about this orphan disease and works to improve the quality of life of all those affected by it.

Financial

100.00

Accountability & Transparency

100.00

This rating was published 02/01/2022 and includes data from FY2020, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
88.8%
  Administrative Expenses 5.7%
  Fundraising Expenses 5.4%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 1.53
  Program Expenses Growth 16.6%
  Liabilities to Assets < 0.1%
All data for Financial Performance Metrics calculations was provided by Charcot-Marie-Tooth Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Charcot-Marie-Tooth Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Charcot-Marie-Tooth Association (PA) 100.00
Cure SMA (IL) 86.97
Parent Project Muscular Dystrophy (NJ) 96.46
The Boomer Esiason Foundation (NY) 85.61
Restless Legs Syndrome Foundation (TX) 85.37

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $4,579,448
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $410,629
   Related Organizations $0
   Government Grants $211,856
Total Contributions $5,201,933
   Program Service Revenue $0
Total Primary Revenue $5,201,933
   Other Revenue $30,409
TOTAL REVENUE $5,232,342
   
EXPENSES  
   Program Expenses $3,553,178
   Administrative Expenses $194,701
   Fundraising Expenses $155,871
TOTAL FUNCTIONAL EXPENSES $3,903,750
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,328,592
   
Net Assets $5,686,656

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Fellowships & Grants $2,930,291 82.5%
Education and Patient Support $622,887 17.5%

Ratings History
Charcot-Marie-Tooth Association has received 3 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2020-12 02/01/2022 100.00
2019-12 01/08/2021 99.51
2018-12 12/01/2019 95.88
2017-12 12/21/2018 87.39
2016-12 03/01/2018 85.49
2015-12 02/01/2017 87.18
2014-12 06/01/2016 90.67
 
CN 2.0
2014-12 11/01/2015 91.94
2013-12 08/01/2014 91.65
2012-12 10/01/2013 87.02
2011-12 09/01/2012 79.81
2011-12 08/01/2012 79.61
2010-12 12/23/2011 63.98
2009-12 09/20/2011 69.94
 
CN 1.0
2009-12 03/01/2011 68.93
2008-12 12/01/2009 92.65
2007-06 05/01/2008 80.35
2006-06 05/01/2007 83.92
2005-06 02/01/2007 79.13

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 22-2480896
Name in IRS Master File CHARCOT-MARIE-TOOTH ASSOCIATION
NTEE Code G8X
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(125) Giving information or opinion (see also Advocacy)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date June, 1986
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$259,200 6.63% Amy Gray Chief Executive Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
Charcot-Marie-Tooth Association (PA) 100.00
Epilepsy Foundation of Minnesota (MN) 92.20
Parent Project Muscular Dystrophy (NJ) 96.46
Cure SMA (IL) 86.97
FSHD Society (MA) 91.85

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Charcot-Marie-Tooth Association
P.O. Box 105
Glenolden, PA 19036
tel: (800) 606-2682
fax: (610) 499-9267
EIN: 22-2480896

Visit Web Site

Board Leadership

Gilles Bouchard
President

CEO

Amy Gray
CEO

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